International Conference on Rare Diseases 2021

EMA Pediatric Committee, EPF, WDO, EAE Board Member

President, Hellenic Friedreich’s Ataxia Association

Vice President, European Parliament

President “95” Rare Alliance Greece

MEP, EPP Group in the European Parliament

Secretary General for Coordination, Presidency of the Hellenic Government

Director General, European Federation of Pharmaceutical Industries and Associations (EFPIA)

Vice President, “95” Rare Alliance Greece, Rare Disease Patient Advocate

Director of Support, Genetic Alliance UK/ SWAN UK

Professor of Genetics, National Kapodistrian University of Athens

MD, PhD, MRCPCH, FRCPCH, Consultant Paediatrician

MSc, Social Worker, MDA Hellas

MEP (RE, AU), Member ITRE

Head of Brussels Liaison Office, Public Policy & Government Affairs, Biogen

MD, PhD, Emeritus Professor, Medical School, Aristotle University of Thessaloniki

MD, PhD, Professor of Neurology, National and Kapodistrian University of Athens

Director of European Reference Networks and Healthcare, EURORDIS

Chair, World Duchenne Organization, Directeur, Duchenne Parent Project Nederland, Board Member, EURORDIS

Research and Policy Project Manager, EURORDIS

Internist-Diabetologist, Head of Independent Department of Therapeutic Protocols

BoD President and Hospital Manager, Children's Hospital "Agia Sofia”, Athens

President of the Association of Cancer Patients & Rare Diseases of the Prefecture of Evros

Coordinator of the European Joint Programme on Rare Diseases

Deputy Minister for Research and Innovation, Ministry of Development and Investments, Greece

Professor of Pediatrics