February 7-8, 2025
Adults living with cystic fibrosis are invited to join BreatheCon, a virtual event to connect with other adults with CF in a welcoming and inclusive space. Event programming will be announced in December. Reserve your spot for BreatheCon 2025 today!
What to Expect at BreatheCon 2025
BreatheCon offers a variety of ways to participate and meet other adults with CF, including small-group discussions, fun activities, and inspiring panel presentations. Session topics explore the unique experiences, milestones, and journeys with CF, including:
- Gain insights from people of color with CF as they share their personal journeys of self-advocacy
- Hear stories from older adults with CF as they share their perspectives, life lessons, and advice to the younger generation
- Discuss the challenges and changes Trikafta brings to diet, nutrition, and weight
- Explore unique journeys to parenthood, including the use of fertility treatments and adoption
- Discuss the emotional and mental health challenges of living with CF when CFTR modulators are not an option
- Connect with others managing CF alongside additional health conditions and share strategies for coping and managing care
- Connect with other adults navigating life after a lung transplant
- Learn about CF Foundation Compass and other resources and services to support you on your CF journey
- Enjoy virtual games and social opportunities to build your CF community!
Acerca de BreatheCon
Se invita a los adultos que viven con fibrosis quística a unirse a BreatheCon, un evento virtual para conectarse con otros adultos con FQ en un espacio acogedor e inclusivo. Qué se puede esperar en BreatheCon:
- Obtenga información de personas de color (todas las personas no blancas) con FQ mientras comparten sus experiencias personales luchando por sus propios derechos
- Explore caminos únicos hacia la paternidad, incluido el uso de tratamientos de fertilidad y la adopción.
- Escuche historias de adultos mayores con FQ que comparten sus perspectivas, lecciones de la vida y consejos para la generación más joven.
- Más información sobre Compass, un servicio de la Fundación, y otros recursos y servicios que le ayudarán con la FQ.
La programación del evento se anunciará en diciembre. ¡Reserve su lugar para BreatheCon 2025 hoy!
Meet the 2025 BreatheCon Speakers and Committee
Caleigh Haber-Takayama (she/her)
2025 Co-Chair: Spain
Brandon Wright (he/him)
2025 Co-Chair: Ohio
Tiffany McDaniel (she/her)
2025 Co-Chair: New York
Anna Battista
Committee Member and Speaker: California
Anna Spencer
Committee Member: North Carolina
Ashley Locke
Committee Member and Speaker: Michigan
Chelsea Stahl
Committee Member: U.S. Virgin Islands
Christina Schulze
Committee Member and Speaker: Missouri
Elizabeth Kellner
Committee Member: Florida
Jackie Venezia
Committee Member: New Jersey
Kirk Astroth (he/him)
Committee Member and Speaker: Arizona
Jennifer McCormack
Committee Member: Illinois
Leah Rossett
Committee Member: Louisiana
Medora Frei
Committee Member: Minnesota
Timothy Duggan
Committee Member: Massachusetts
Genevieve Kahlweiss
Committee Member: California
Denise Thayne
Speaker: North Carolina
Dominic Quagliozzi
Speaker: Massachusetts
Edward Canda, PhD
Speaker: Kansas
Stephanie Macias
Speaker: Texas
Rebecca McWilliams
Speaker: Delaware / Sr. Program Specialist - Compass
Marcia Freeman
Speaker: Missouri
Tre LaRosa
Keynote Speaker: Washington, D.C.
Mimi Salonen
Speaker: Colorado
Maria Clark
Session Facilitator
Ingrid Petersen
Session Facilitator
Lisa Stackhouse (she/her)
Session Facilitator
Katherine Russell
Session Facilitator
Nicole Kowal
Session Facilitator
Drew Hanley
Session Facilitator
Brad Hamelin
Session Facilitator
Chyann Hoyle
Session Facilitator
Emily Trout
Session Facilitator
Stacey Starkman
Session Facilitator
Ileanyss Collazo
Session Facilitator
Nikki Gambale
Session Facilitator
Victor Roggli, MD
Karaoke Party Emcee: North Carolina
BreatheCon Art Contest
Congratulations to this year’s BreatheCon art contest winner, Shelby Luebbert! Using the prompt, “One Disease, Many Stories”, adults with CF were invited to submit an original creative work of their own design. Shelby’s winning submission will be featured throughout the event and on promotional materials.
