2020 SCN8A Clinician, Researcher, and Family Gathering
Proudly supported by
Speakers
PhD, Founder/Director TCSF
PhD Candidate, University of Virginia
PhD, Senior Consultant/Lead Clinician, Danish Epilepsy Center, Filadelfia
PhD, Research Associate, University of Virginia School of Medicine
President and CEO, Praxis Precision Medicines
PhD, Associate Professor of Anesthesiology, University of Virginia
PhD, Professor of Human Genetics, University of Michigan
PhD, Research Associate Professor of Pharmacology, Northwestern University
MD, PhD, Senior Medical Director, Praxis Precision Medicines
MD, Director of Epilepsy Genetics and Director of EEG, Children's National
Senior Manager Medical Affairs, Zogenix
Director Medical Affairs, Zogenix
Booths
Welcome Message
Event welcome by Hillary Savoie.
Meet Milo
Milo is truly a superhero.
Meet McKenzie
Let's keep McKenzie's smile bright!
Meet Max
Max has the best brother, ever.
Meet Shirley
Shirley loves playtime with her sister and is a fighter!
Meet Cam
Let's run at fighting SCN8A like Cam does!
Meet Hazel
Hazel has all kinds of days—the good, the bad, and the amazing!
Heather and Tate
Tate's Story
Sex and Strain Differences in the Natural History of the SCN8A-N1768D Mouse Model
Michael Hammer and Erfan Bahramnejad
SCN8A 101
Eric Wengert
Meet McKinlee, Ellie, Addyson, Tate, and Heidi
We are so proud of all of our SCN8A warriors! #StrongerTogether
Meet Hannah, Varya, Blake, and Oliver
We are so proud of all of our SCN8A warriors! #StrongerTogether
Meet Bruno, Thomas, Lily, Wyatt, Emma, and Stijn
We are so proud of all of our SCN8A warriors! #StrongerTogether
Meet Billy
Billy misses everyone... and wants us to know that he's really cute.
Meet Nico
Nico is 7 and said his first word this year!
Meet Stella (and her big brother Lincoln!)
Stella and Lincoln want a medicine that takes away her seizures, but leaves her giggles!
Meet Addy
Addy is finding her voice!
Meet Mia
Mia just wants to be happy!
Meet Emma
Emma wants you to know that time is ticking down and we need better medication options ASAP.
Meet William
William is an SCN8A Hero!
Meet Liam
Liam is a warrior!
Meet Sadie
Sadie is one year seizure free!
Meet Otto
Otto was failed by 14+ seizure medications before the age of two.
Meet Henry
Henry loves to play!
Milo's Story
Gaelle, Juan, and Milo
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